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PLUS Members’ Spring Gathering

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The Scottish Minister for Sport, Health Improvement and Mental Health, Jamie Hepburn gave the keynote address at our members Spring Gathering on Friday in the Queens Hotel. We invited the minister so we could find out more about his role of improving mental health in Scotland and to establish a communicative partnership with him and the Scottish government. He also took part in a question & answer session with us, discussing issues such as welfare reform,  mental health budgets, smoking in psychiatric in – patient facilities and how PLUS can have more influence on policy and practice.

Marilyne Kubath said

“ Myself and the other PLUS members really appreciated getting the chance to question the minister directly. He was very approachable and friendly and seemed to enjoy just talking with some of us on an individual basis too. Having him at our gathering was a fabulous vote of confidence for us”.

Overall we all agreed the visit had been extremely empowering and although everyone was not 100% happy with all of ministers points of view they felt satisfied they had their voices heard and would be able to go on to act on some of the live issues in a positive and more informed way.  We intend to keep in touch with the minister.

The Great Unfolding Of Our Hearts

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FIRST NATIONAL CONFERENCE ON OPEN DIALOGUE

LONDON   MARCH 2015

‘The Great Unfolding Of Our Hearts’

 

Dr Russell Razzaque introduced the conference to a 600 strong audience and welcomed delegates from Germany, Canada and Scotland. The great interest in Open Dialogue he said was borne out of mental health workers feeling ‘we can do better’. He said that better care from the outset was more economical in the long run. In OD 72% of people presenting with first episode psychosis were back to work within 2 years. He said that good mental health works around good relationships. The crucial importance of relationships was repeated by others frequently throughout the day.

John Brouder – Chief Executive of NELFT took the floor next saying OD will be ‘the revolution in mental health services’ and said OD resonates very closely with a mindful approach of ‘being present’. Being present to hear the patient in their distress and not to ‘shut them down’ – for clinicians to be able to tolerate uncertainty frequently not knowing where things will lead -this struck a chord with me in my own experiences of working as a nurse.

Mark Hofenberg quoted Karl Rogers the more a therapist is themselves the more a person recovers’ and said that we needed to keep asking ourselves as clinicians ‘are we doing it good enough’. He described OD as being based on science. It is focussed on three values, openness, authenticity and unconditional warmth or love. Clinicians needed to practice self -compassion to feel compassion for others and that OD training was ‘a journey of self- discovery and learning to be trusting of the patient’s ability to heal themselves”.

A considerable part of the conference was focussed on the wealth of knowledge in families and therefore the importance of families in the process. The ‘Triangle of Care’ an important document in relation to this was mentioned.

Dr Tom Stockman, who had invited me to the conference, said what was different about OD was you could ‘feel the hope’ – that something profound seemed to be happening with the patients receiving the OD approach, ‘though we were still not quite sure what it was’. There was lively debate in the audience following the presentations with a high proportion of input from mothers of sons with psychosis. A GP also spoke about how he was ‘blown away’ by the approach and asked about its use in primary care.

The thing that left the biggest mark on me from the conference was a story from a delegate who had lost her brother to suicide. He had been diagnosed with paranoid schizophrenia and she said did not get the help he needed. She said she was writing a book about her brother – The Great Unfolding of our Hearts – where I believe the greatest value of Open Dialogue lies.

http://www.nelft.nhs.uk/mental_health/Open_dialogue or contact PLUS for more info.

News from the PLUS Rural Groups

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It has now been one year I have been in post as PLUS Rural involvement worker. I have spent very valuable time building my contacts and strengthening my partnerships with other organisations, as well as, but most importantly of all working with and meeting PLUS members keen to make a difference.

We have managed to get together several times over the last year, having good discussions and sharing new information.
It has now come to the New Year, with a lot of good ideas for us all to take it a stage further. It is always a main part of
PLUS and also my focus to ensure that the members steer the group and let me know of things that are important to them.

In Blairgowrie, we are in the process of setting up a garden project, art groups and workshops, computer skills workshops,
showing documentaries and organising guest speakers on promoting empowered people and communities.
In Kinross, we are arranging different documentary showings centred on empowerment and inviting speakers to share
up to date information and stories on issues identified by the members in the member meetings, we may also be
arranging taster sessions on complementary therapies, self-management and wellbeing workshops.

If you are interested in getting involved with any of the projects in either area please contact the PLUS office on
01738 626242 or turn up.

On and Beyond Psychiatric Diagnosis

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I attended the Critical Voices Network Ireland (CVNI) two-day Conference at University College Cork on 12 & 13 November 2014.

The CVNI is a network for people from diverse backgrounds (people with self- experience, carers, professionals, academics and interested others) which provides an opportunity to share, discuss and debate critical perspectives on and beyond recovery.

The first keynote speaker of the Conference Olga Runciman, chair of the Danish Hearing Voices Network, called herself Denmark’s first mad psychologist and got us thinking about what she called the ‘phenomenon of voice hearing’ –

This was a very interesting presentation and certainly challenged some of my thinking.

The next keynote ‘The Value of Labelling’ by Stuart Neilson, a lecturer who writes about autism and brought his personal perspective into the presentation, spoke for the value of diagnosis. During his lifetime he had suffered badly, been called names and excluded because of his difficulties in communicating well with others. He also spoke about a report ‘The Not Guilty Verdict’ which perhaps explained why people found having a diagnosis helpful. The downside of diagnosis he said however ‘was in who was applying the label and how accurate it was’.

Towards the end of the session Stuart said “We called ourselves freaks in the 60’s – we felt empowered in doing so”. 

Once again the presentation brought up some interesting and new concepts but what stuck most with me was the idea that people choosing a description for themselves, if they think they will help them, is completely different from being labelled by another.

Pat BrackenConsultant Psychiatrist and Clinical Director of West Cork Mental Health Services kicked off day two presenting ‘Critical Thought as a strong and Positive Force for Mental Health. He said he wanted to open spaces for new ideas and agendas in mental health and believed critical psychiatry was the way forward for this. His finishing comments summed up very succinctly what I think he was saying overall;

There should be more power in the lives of ordinary people so they are enabled to critically think – having the spaces to do so. Critical thinking is indeed a positive force in psychiatry.

The conference included many more fabulous speaker, workshops and experiences of learning and understanding which I am still pondering away on – presentations are available here

Meanings of Madness

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PLUS recently attended the ‘Meanings of Madness’ conference in Cork, Ireland.

MEANINGS OF MADNESS; CRITICAL AND CREATIVE PERSPECTIVES

University College Cork, November 2013

The purpose of this conference organised by the Catherine MCauley School of Nursing and Midwifery was to find better ways of helping people who experience madness – ‘to find creative approaches to engaging and responding to madness’.  Throughout the two days I listened to some excellent speakers and participated in several very worthwhile workshops:  One of the keynote speakers Doug Ross presenting ‘Transformational Crisis’ (how difficult states of mind can be a vehicle for transformation and self- discovery) said he preferred to think in terms of himself being in full rapture with the world rather than in recovery. He talked about ‘assaults on the self’ and listed loss, violence, bullying, failing exams all happening at once as ‘multiple hits’. He asked how do we find the safe places and spoke about the healing power of communities. His talk was both hard hitting and poignant at the same time. He ended with a beautiful poem by Canadian poet Alden Nowlen which touched many of us lucky enough to be there.

The first workshop I took part in, facilitated by Liam MacGabhann a lecturer at Dublin City University and community activist, illustrated Open Dialogue (Seikkula et al 2006). It provided a glimpse into how open dialogue as a way of relating within madness is not so out of reach as some may think. The Open Dialogue approach is both a philosophical/theoretical approach to people experiencing a mental health crisis and their families/networks, and a system of care, developed in Western Lapland in Finland over the last 25-30 years  (www.OpenDialogueApproach.co.uk).

 In another  workshop ‘Madness as Defined by Einstein’ Liz Brosnan  presented a novel framework, Gaventa’s (2006) power cube to examine the politics of service-user involvement.  This was an excellent learning experience. I quickly realised the barriers to authentic involvement were the same in Ireland. I scribbled lots of notes and absorbed new ways PLUS could improve service user involvement in P&K.

 It came as no surprise to me that the person’s story and the power behind it featured regularly throughout the conference –  in fact I heard many people’s stories whilst I was in Ireland – not only at the conference. I spoke with taxi drivers, hotel staff, and tourists who also had inspiring life stories, some of overcoming adversity. My listening skills were well polished up during the trip.

Particularly memorable was one elderly Irish lady campaigner, a very powerful speaker when sharing what happened to her almost thirty years ago in the Irish psychiatric system. Her story was met with disbelief and shock, especially by the young students listening closely.  Unsurprising to me I sensed a great need for people to say what happened to them and that’s what was great about the conference – it offered a safe place to do that.

The whole experience  left an imprint on me. It increased my knowledge and understanding, practically providing resources and new approaches to help people who experience madness. Most valuable of all was the shared humanity and inspiration that I gained personally. I am extremely grateful at being able to attend this conference.

Self Directed Support Scotland

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SDSS have just released new videos on self-directed support. These videos give more information on SDS and how to access it and the frequently asked questions on the subject. If you would like more information on your local area please visit the SDS Information and Support services database.